URC BD

I’ve had a small glass of wine. I’m resisting the urge to write.

I have Ultra Rapid Cycling Bipolar Disorder. I’m not sure if there is “2” “II” behind it or not for this glamorous sounding disease.

Now, and for the last five days, I’ve taken a dive into the abyss of depression. No, I’m calling it a fall into the abyss of depression, that sounds less deliberate, because I certainly have no control over it.

If you know anything about or suffer from a mood disorder and read my last post, I think it is obvious that I had begun falling in a dramatic way.

I’m much more aware and less likely to fight against admitting defeat these days, so I call my Dr. and get in right away.  There is always a lot of crying on my part and a lot of rifling through my three maybe four-inch-thick file folder on his part.  I think I’ll mention to him next time – it’s time for a binder.

He looks, he thinks, I cry, I tell him what I think is wrong and he comes up with yet another plan. 

I’ve been cycling again, but not at all in a fun way, I’m not getting the pleasant phase. The productive, “Aren’t I amazing? “ and “I love me!” phase. All depressed and irritability. More like angry and pissed off. Either sobbing or berating myself as pathetic. Raw exposed nerves, don’t even talk to me and definitely don’t touch me! I want to be hit by a truck and throw things that aren’t cooperating. I’m not eating either. I cannot even enjoy the lack of appetite and therefore lack of calories because it is a danger sign that I’m getting closer to the edge.

No one knows I’m felling this way because I have way too many responsibilities and way too high standards for myself to drop the mask I have perfected over a lifetime.

So about now you might be thinking, where is all this going? She has definitely not been able to resist the urge to write.

I was resisting the urge to write because I had a small glass of wine.  I know I am not supposed to drink because of my condition, but when I feel this depressed it is the only relief I get until the medicine starts to work.  Luckily, I metabolize medicine very quickly.  That is also a plus for the very small amount of wine I need.  I have been known, a year or so ago and before, to drink a lot every night. And now I don’t. 

Writing my thoughts and feelings in a blog about being diagnosed with such a stigmatized illness was a great outlet for me. I couldn’t tell anyone I knew because of the shame I felt. It took me months before I told my husband. Drinking was the only way to feel anything. The medicine was levelling me out but there was nothing left. Being buzzed wasn’t the same, but at least I didn’t feel dead.

So what’s next for me? Drink and then write again? Today, and with the way I’m feeling, the buzz feels a tiny bit good and writing this feels good. It feels real. It makes me feel like me. The real me that I love. If other people felt this way about me I know they would love me too.

Is this rock bottom? Nope, not yet.

Time for some honesty.  My life has been hell for the last two years.  It wasn’t that great before divorce, but never like this.

My oldest daughter and I used to be so close, but since the divorce, it has changed.  She doesn’t text back, return phone calls or emails.  There are plenty of ideas going around that have nothing to do with me, but the evidence is irrefutable, it’s me.

My youngest daughter, who came out to me last summer, is transgender.  I’ve been coping, adjusting and trying to understand.  He’s moved in with his dad (and woman he was cheating on me with) last month and has cut off all contact with me.  If you will remember, his dad is a raging narcissist and still will not stop tormenting me.  I suspect Caleb is a border line.  Might as well throw that in to my family; border line, bipolar, narcissist….I’m surprised any of my children are functioning.

I have also be cut off by my beloved sister.  I guess mental illness and the drama of my marriage, divorce, transgender child was just too much for her.  I’ve sucked her dry.

My therapist is actually just trying to keep the boat afloat.  Trying to give me ways to cope, because facts are facts, all this shit is happening and I can barely come up for air before some other event occurs.

I had to call 911 on Caleb before he moved into his Dad’s because he threw a tantrum and was destroying my bedroom and bathroom.  Glass was everywhere and due to his mental health I was afraid for him.  No one from my family has asked me, what happened and how I am.  I am totally shut out.

What the hell is going on?  I am alone.  I’m supposed to be depending on my friends according to my therapist, but I’m not there yet.  It’s not the same.  I’ve never lived alone.  As with most mothers, my family has been a huge part of who I am and now they are all gone.

I’m sure it looks bad for me.  I must have done something.  I must be something to drive everyone away.  The only thing I am is … well the only thing I think I am is unimportant and not worth the effort.

I feel like shit right now.  I feel like shit everyday.  I’ll make it though and eventually get to enjoy my life.  I’ve been telling myself that for 52 years.

 

Crystal Lynn enters, stage left

I said in my last post, first one in a long time, that things were getting better because I’m learning and putting into practice ways to cope.

There is still so much drama in my life it is unbearable at times, like last weekend.  I can’t even write about it because the anxiety still bubbles up and fills me.  I was so depressed it wasn’t looking good for me.  My medicine is working, I know the difference between meds screwing up my mood and other depression caused by rejection, fear, feeling, lonely, confusion and stress.  My narcissist ex-husband the cause of all of it. It was bad.

I was doing that pathetic crying again., Where you don’t make a sound or move and the tears role down your cheeks.  I tried not to give in to it.  I knew I should try all the “tricks”, but I couldn’t even do that.

Sunday morning around 11am it was either this or me.  Dead serious.

So I got into bed, watched reruns of “The Big Bang Theory” and waited.

I’m not sure how long it took or why it started to happen, but I started to come around a little bit.  Nothing like a phoenix rising from the ashes, but clawing out from under the earth and reaching the surface.  Very dramatic, but that is how it was feeling.

Just that little breath of air from the surface began to clear my head.  I meditated for 5 minutes, crying.  I read a little book I have about 50 mindful ways to calm.  And then I remembered, Crystal Lynn.

Crystal Lynn is my alter ego that I developed to stop being so, well, being me.  She doesn’t have a job, sits on her porch all day surrounded by cars on cinder blocks, smokes and does what she wants.

I needed her because she says things like “Who cares?” and “Fuck you!” and “Fuck that”. If she says it enough it feels real, I stop caring and I can breathe a little more. When she’s thinking for me I reach that calmness.  It’s amazing how she can practically soften blood pounding in my head, pain when I breath in and my pounding heart.

In my already delicate mental state, a teen age transgender daughter/son (I’ll tell that story sometime) working two jobs, narcissist ex-husband that despises me…I’ve got to stop writing about it again, my chest is beginning to constrict.

On top of all that…I made my self-crazy with anxiety, because trying to be the best at everything and usually failing I fell into that vicious cycle.

Crystal Lynn doesn’t handle the bigger situations as well, but I cause almost the same symptoms with the little things as well as big things.

Example of a little thing that I made into a big thing:

My son’s college graduation. I knew my ex-husband would be there and then I found out the night before that my ex-in-laws were coming as well. I started trying on outfits, using it as a way to redirect my anxiety (didn’t realize that was what I was doing).  I tried on all my clothes and shoes. Nothing fit because I’ve lost so much weight, but still lumpy in places.  Worrying about where I was going to sit, what time should I arrive, where were they sitting, what if I saw them, what if they were there for pictures…. spinning out of control as usual.

Enter Crystal Lynn,. She said, “Just wear something you will be comfortable in, John knows what you look like and there isn’t anyone else that you have to impress or even cares what you are wearing.”  Now anyone could have already said that before, but it’s a magical feeling to feel it and do it with absolutely no second thoughts, almost as if I came up with it myself!

I think people with anxiety and/or PTSD reactions will totally understand how a small thing, or in my case, all small things connected to John start to get on that endless circle only picking up speed with each pass.

I wore my comfortable outfit that fit. White jeans and black cardigan. At the last minute my dad said he was going with me.  I fought the physical reactions, took half a clonazepam, parking no problem.

We sat with my son’s wife’s family, didn’t look around and I don’t think I was spotted. Took pictures with Tristan.  In laws and John showed up.  I was aloof and took the high road (hate that road).

Thanks, Crystal Lynn, please come again.

It’s a new day, it’s a new life….

I began writing my blog from a need to accept my newly diagnosed self with Bipolar II.  At that time, except for my marriage, that seemed to be my biggest struggle.

I wrote mostly about everyday things with a little humor.  Those were good times.

My posts changed with my mother dying.  The trauma of those two weeks coupled with my broken marriage wreaked havoc with my delicate emotional balance.

The next years became fraught with major life changes.  My youngest daughter’s seizures, my narcissistic ex husband’s affair and the divorce.

I was thinking back to the last year and a half (which I try very hard not to do).  My relationships with my children were falling apart. I was emotionally falling apart.  During this turmoil I was still able to work full time and part time on the weekends, put on a happy face to the world.  I had some bad moments where I was responsible.  I had terrible moments that I was not.  I was out of my abusive co-dependent marriage, but having withdrawals from the tiny crumbs of love that was all I had received for the last 27 years. I was 25 pounds overweight. My medicine was causing trouble and I was drinking a bottle of wine every night.  To add to this pile of misery was my constant drive for perfection in everything from work, family and even the speed of my recovery.  I was a mess.

Now to the present. I am 25 pounds lighter, no more drinking wine every night, medicine stable and relationships repaired.

I’ve still got a ton to fix, but I’m finally coming out the other end and I can tell my stories with humor again.  I can write how I fixed and am fixing so many things.

The most important indication of my new found hope was changing all my passwords to happy words with exclamation marks!

Another One of Those First World Problems

I feel complaining about insignificant things and labeling them “FWP” exonerates me from being a whiny spoiled person living in the best place in the world.  I’m also a jaded ex-catholic, so there is already a layer of guilt underneath everything I say and do.  

I want to post this for another reason.  With the hell I’ve been going through for the past year from medication side effects, divorce, being ostracized by my children and doing all of this in a delicate mental condition, I welcome superficial trivial problems. 

Here is one now:

Well, so far this is a very good day! I colored my hair this week from an online hair color boasting it is just like the professional color. I don’t know why I bother. The brown of my hair turned out beautifully but the white came out a light brownish reddish. Anyway……I used the last of my root concealer two days ago (forgot all about covering my roots on Tuesday and was out doing errands for four hours). Luckily I wasn’t aware so had all of the confidence of a good looking person. Back to my roots (pardon the pun) I was even debating wearing one of Allison’s hats to hit the Walgreens early before too many people were there to get a new can of concealer. In the bathroom I took one more last ditch effort, fingers crossed, to look in the bathroom closet.  There it was buried under cold medicine…..half a can!!!  Halejuha!

Dear Life:  please keep bringing on those kind of problems.  I really need a break.  xoxo

This is Going to be a Long One

So much has happened since my divorce was final I am going to start at the end and do sort of a flash back thing until I lose track of which order everything came in.  Please follow along…

The elation and anticipation of being off for the summer was thwarted because I had to ween myself off Pristiq. Withdrawal symptoms have been complete exhaustion, not eating, and brain zaps to name a few.

I planned this withdrawal very carefully.  Two years ago, I stopped taking Abilify because of twitching in my legs.  Two weeks later I fell into a deep depression.  I was put on Seroquel.  Two weeks later, another depression because the dosage wasn’t high enough.

One of the things I am terrible at is judging my state of mind.  I think it goes back to 43 years of coping with my moods alone.  I had to mask them from others and myself.  Not recognizing my last decent into into hell, my therapist and I came up with a 10 point question sheet to ask myself if I’m feeling different.  It makes me feel more secure.

I spoke to Tristan about needing his help if I go into a depression.  I spoke to Allison and told her if this happened she should call Tristan if I couldn’t.

After two weeks of careful planning the withdrawal and doing everything I’m supposed to do I took a dive.  It was more like a crash and burn; I don’t even remember the dive.

Getting Tristan’s help was more stress that help so I called the only sane person I know, my sister.  I started to cry and she said to call my psychiatrist.  I did and he called me back very quickly. My sister had called his office and said it was an emergency.  My Dr asked if I was suicidal because my sister had threatened to call an ambulance. Total overreaction.  Just writing this out makes me feel humiliated.  And I was and am.  What do they say about best laid plans?

The reason I had to stop taking Pristiq is because it was causing “Serotonin Syndrome”.  I had all the classic signs especially the hypo-mania.  I used to look forward to this little gem in my non-medicated un-diagnosed life.  Now it really sucks.  No pleasure from it, just agitation, irritability, poor sleep and all the other bad traits.

I wrote most of this blog the day after the crash.  I must have lost my concentration at the end because I had begun writing in a “stream of consciousness” style.

I wrote about how nobody understands, how I can’t trust anyone to be there, why am I even trying so hard, what is there to live for……

I know that is how I truly felt.  It’s not true today.

It’s just me and Allison now.  I am alone to take care of me.  I have always taken care of Allison on my own, but I’ve always had help for me.

I’m going down another half dose this week, I’ll be brave.

Necessity is the mother of invention.

I was cleaning out the bathroom drawers.  I have been accused in the past of throwing out things I shouldn’t have.  I can usually counter that accusation by finding the item in question.  I am the record holder of “Supreme Finder” title in our family.  I can find things without even looking or getting up.

As I said, I was cleaning the drawers in the bathroom vanity.  I pulled everything out first, cleaned the drawer and then put everything back in.   Well, almost everything. There were the loose tooth floss toothpick things, hair ties, stray, Q –tips, old toothbrushes, etc. Those I threw away.

The real danger came when I approached John’s drawer.  I pulled the drawer open and felt my blood run cool for just a moment.  Okay, that may have been my imagination, but you get the gist of the apprehension I was feeling.

In his drawer were razors, empty toothpaste tubes, used stray toothpick floss things, an old handle for the blinds, combs and a few pens.  Pretty straight forward I thought.  A no-brainer.  Ah, no.  Nothing is ever simple with John.   It is my fault.  I should’ve realized it.  I should have tried to get into his brain while I analyzed every piece of bathroom paraphernalia in his drawer.   Hindsight is 20/20.

The next day John casually asked me if I had seen a white pole when I was cleaning out the drawers.  I didn’t remember until a few minutes of thinking about it.

“Oh, yeah, I threw it away, ” I don’t know why I felt so confident in myself at that moment. It didn’t last long.

“I had made it into a handle for my razor so I could shave my back”, he said quite calmly.

“Oh no! I thought it was just an old pole!”, I cried (it was just an old pole).

He was very calm, unlike him calm and said, “It was the handle from a blind and the end was broken in just the right way so the razor handle fit.” I thought this was a little strange to invent something when he could have bought one.

My first response to a problem, especially when caused by me is to begin to solve it.   I took a handle from the blinds in the bedroom, no dice.  I took one from Allison’s room, no.  My last one was from the kitchen and it didn’t work.

I felt terrible, probably worse than the situation warranted (as is also my way), but I kept trying to fix what I had caused.  I think I was also trying to save face.  I had always heralded the fact that whatever I was accused of throwing away I had always found it and felt quite smug about it too.

My first line of defense was Amazon.  I looked for something to replace “the rod”.  I found two things, so I screen shot them and sent them to John.  He texted back saying “I will figure something else out”. Always the martyr.

I had an idea of going to ACE Hardware with the razor and getting a piece of pvc that it would fit into.   I could also get some plastic tubing.  I meant to go there twice, but I always ran out of time.  Yesterday I went to the bank, the post office, grocery store, etc. and I thought I could fit it in.  I was in the process of trying to convince myself to go when I had an epiphany.

I had found a replacement “razor pole” and he said thank you, but no.  My part was done. I can move on with the other 15- 29 things on my to do list.

Who was I trying to kid? Of course, I didn’t move on!  I went to ACE today and told the guy what I needed and what I needed it for.  I asked for pvc pipe and plastic tubing.  I got it home and after much filing, shoving and twisting etc., I got it to work!

Pheww, that was close!  I almost wasn’t able to move on with my life.


I’ve included the blueprint to the “razor pole”  below in case anyone is in need of such a high quality gadget.

IMG_1668
High quality blueprint

Going Underground

I have been underground again. I didn’t feel I had anything relevant to say for the last few months. I have a certain criteria* of the things I will post.

My post must be:

  1. interesting.
  2. have my unique point of view (I’ve finally put it to some good use).
  3. have an “END” or a clever phrase to wrap it up (wink).
  4. true.
  5. Anonymous. It cannot contain any details that would lead someone to figure out my real self. Literally my name, etc. I know I am either extremely egotistical or completely paranoid that anyone really cares, but nevertheless it is an issue.  I have remained incognito my entire life.  I think it is one of my “things” that no one except my immediate family knows the real me.  The crazy me.  The unbalanced me.  The totally fucking exhausted keeping up appearances me.

* There has been a flash flood of stories that meet my stringent criteria.  Tune in.

I’m Going to Adam Lambert!

I’ve got tickets to the Adam Lambert concert in a few weeks!  You can’t possibly know how excited I am!  Picture me skipping.

The last concert I went to was U2.  Yes, a very far cry from Adam Lambert.  Whereas Bono’s lyrics soothe my hectic mind, Adam Lambert’s voice does.

When I found out he was coming to my city, I felt sad and disappointed because I didn’t think I could get anyone to go with me.  About 15 years ago I got free tickets to Duran Duran (big fan).  I convinced my sister to go with me, but I knew then it was a one-time deal.

That night I, Allison, Tristan and Tristan’s girlfriend, Addie, were in the living room hanging out. I was going to spring it on them, but my timing had to be perfect.

I asked Allison first.  She shot me down.  I explained how much fun concerts are and she would have a great time.  “But not with my mom!” she said. She’s fourteen by the way.

“Tristan, would you go?” I asked enthusiastically.  Tristan tends to be a little eccentric sometimes so I really did think I had a chance.

“I can’t go to an Adam Lambert concert! Isn’t he gay?”he asked.

“Yes, but that doesn’t mean you can’t go.  I know I’ll be beating the men off with a stick, but I really can’t go by myself, “I said “Anyway, most of the crowd will be middle aged women and teenage girls.  See, Allison, we would fit right in!”

Next on to Addie…”How about it Addie?  Would you go with me?”

“You bet, I’d love to go!  Let me check my calendar!”, and shbegan looking at her phone.

Tristan says, “Addie I didn’t know you liked him.”

“Oh, yeah, he’s gorgeous!”

Wow! I had no idea! Wait, not so fast!

“You like Adam Lambert?” asked a disbelieving Tristan.

“Oh, I thought you said Adam Levine!”

Poor Adam, he is either getting mixed up with Levine or Miranda.

 

One Year Anniversary

An anniversary is coming up. It’s been almost a year since I filed for divorce from John. In some type of modern day miracle he met all of my demands to not go through with it.

I asked him to see a counselor. He did. I wanted a bank card with my name on it instead of always having to ask him for money. It was humiliating. He got one for me. I gave him a pretty lengthy list of behaviors he must change. He has. That’s the miracle!

I also wanted him to go to my therapist with me so she could explain my condition and what I needed from him. He came with me the next appointment. She explained the disorder and how it effects me.

So the question I have left for myself is…. was I wrong? Was he just acting like a narcissist, but not really one? That’s the best answer I have come up with. My mother was one. Maybe I am just extra sensitive. I think it also has a lot to do with age. John had treated me badly pretty much of our whole marriage. I don’t think the same approach would’ve worked with him 10 years ago.

Of course, there are problems. I am still in the habit of withdrawing. When I realize I’m doing that it takes all of my willpower and energy to make sure I reconnect with him. I do love him, I always have. At least now he is making it much easier.

One horrible thought keeps seeping in.  What has he been through living with me for 20 years, a mental case? Oh yeah, I am medicated now, but it has taken at least five years to even out my mood.  And even then I just suffered two major depressions in less than three months.  He has always hung in there.  Hanging in there emotionally abusing me, but none the less, stayed. I don’t have an answer.